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C’s Tonsillectomy and Adenoidectomy surgery part 3 Week 1 recovery

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In this post I am going to take you through the 14 day recovery that the doctors said we would face.  I am writing each day and publishing at the end of the 1st and second  week. I am hoping this will help those who will have to go through this, and maybe it will help me not go as crazy watching my munchkin go through it.

You can see the first 2 posts here and here

THE DAY WE CAME HOME(DAY 1):
It went much better than I thought it would.  Other than the throwing up on the way C is doing pretty well.  Still really sleepy and not feeling great, but she was able to get some jello, popsicles and water down. She is getting Tylenol with Codeine every 3 hours, and it seems to be working, she hasn’t complained much about her throat, however her tummy is hurting…hunger maybe?

NIGHT 1:
C was up about every 3- 31/2 hours but was able to fall back asleep quite easily after taking her medicine and having a drink.  I was a little worried I wouldn’t hear her if she woke up because of my medication, so I have her sleeping in my bed, I think I may have woken up twice as much as her, paranoia is not my friend

DAY 2:
Happy 4th of July! C was pretty bummed that we couldn’t see fireworks, the closest ones were about 45 minutes away and I didn’t think that was a good idea since her tummy is still off. So we made fireworks using sprinkles and water:

fireworks
She did elect to get dressed so she could still wear her red white and blue outfit! C was pretty happy when her Cousin M stopped by to bring her a teddy bear and see how she was doing
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And she felt extra special when her Aunt and Uncle stopped by to see her and brought this
3If you can’t tell her favorite color is green, so she LOVED these.  I think the visits helped bring her spirits up.  She was eating pretty good today, I was amazed! She ended up eating a pudding, a gogurt, 4 popsicles, some of a milkshake, and 2 things if Jello,I had been warned she wouldn’t want to eat the first couple days, so I was pretty proud of her, then again I am Mommy, I am always proud of her.  Today she started the amoxicillin 3 times a day, along with the Tylenol with Codeine.  I think that has been her biggest problem so far, since she has been sick so often she HATES taking medicine so it is a fight to get her to take it.  I am wondering how long bribery will work, and wondering how broke I’ll be after 14 days. Cousin Jenni came over and made C a milkshake, she was super excited about it, but wasn’t able to drink a lot of it 😦

NIGHT 2:
Night was about the same as the first night, she was still up every few hours, but again fell asleep easily after meds.

DAY 3:

Today was rough! As soon as we woke up and she gave me a hug I knew it was not going to be good, She was hot, and while they said a fever was to be expected, the fever shouldn’t be above 100.5, I could tell by touch she had exceeded that.  Sure enough she was at 101.6, she was complaining about a headache and not feeling so well.  I called the doctor and spoke to a nurse who basically told me we needed to get the fever down.  The challenge is that Tylenol has never worked to bring down C’s fevers.  The nurse explained to me that C’s doctor doesn’t recommend Motrin but his partner and the doctor who was in the office at the time, does and that while normally she would stick to her doctors orders, if Motrin was the only thing that would bring the fever down she would have to tell me to use it.  I of course had to ask why my doctor didn’t recommend it, apparently at one time Motrin was thought to increase the risk of bleeding, but all of the new testing indicated that it does not, her doctor is older and therefore still uses the old school practice. The nurse did assure me that the risk of Motrin was no where near the risk of not being able to control her fever and so we started Motrin. She instructed me to give her the Motrin the next time she was suppose to have the Tylenol and give her a call to let her know if the fever went down, if it didn’t I would have to bring her in.

She had just had Tylenol so we had 3 hours before we could test it out, during that time I used cool compresses to try to break the fever, with little success, about .2 degrees. 22 minutes after giving her the Motrin her fever was down to 100.6, I called the nurse and she said it was fine and to keep giving her the Motrin.

Because I was exhausted and my brain isn’t functioning at 100%, heck maybe not even 80% I hadn’t asked how often to give it to her, so 3 hours later when her fever was starting to come back up, I had to call the doctor again, this time the office was closed so the doctor called me back and told me Motrin every 6 hours and Tylenol with Codeine 3 hours after the Motrin, in between. He must have heard the worry in my voice because he added that she would be fine and to just make sure she stayed hydrated.

Getting C to eat or drink was tough today, I did convince her to take sips of water throughout the day, because she didn’t want to have to go back to the hospital, she only ate 1/2 a jello and a popsicle, but she was still using the bathroom so I wasn’t too worried about her being dehydrated.

She seemed to be bouncing back a little by late evening.

NIGHT 3:
C was waking up every 2-3 hours, complaining of a sore throat, she ended up having a popsicle at 3:15am.

DAY 4:
C was doing much better today, she didn’t seem to be in too much throat pain, and was able to eat some luke warm cut up noodles with butter, which is a step in the right direction, she did complain that it felt like they were stuck in her throat and had to take a drink after each bite, at least she is getting fluids right? She also ate some peaches today and I think those felt good in her throat because she looked like she was enjoying them.  She asked to go out for icecream so PAPA, me and A took her, and she ordered a Sundae but only ate 2 bites and is still complaining of a tummy ache.  I have been writing down when she has tummy aches and I think it is the Codeine causing it, maybe a combination of lack of food and Codeine? I have decided to only give her the Tylenol with Codeine at night unless regular Tylenol and Motrin can not keep her pain away.  I am hoping this helps with the tummy aches.  I hate seeing her sick and wish there was something I could do to help.  She was feeling well enough this evening to take a walk in the backyard and check on our garden, and she took her first bath since the surgery.  I made it a sensory garden bath

NIGHT 4:
This was a bad bad night, we were up ALOT, C’s tummy was sick and she had horrible diarrhea(sorry baby that one day you will be old enough to be embarrassed that this is on the internet) I ended up changing sheets twice and scrubbing her and the floor.  I finally broke and gave her 1/4 of a Pepto dose and it worked wonders.  Yet somehow she still managed to be up and ready for the day at 8am

DAY 5:
Today I went to my nephews graduation party and C stayed home with my niece, since I thought it would be unfair to bring her to a park with a lake and make her sit, plus they say the sun is bad. I was gone for about 3 hours and my niece said she did great, she had a bowl of buttered pasta for lunch, which is pretty huge these days.  When I got home C was in really good spirits, she painted a bunch of pictures, played with her Lalaloopsy dolls and they had played candyland and she made me play with her again.  She rode her scooter a little and over all didn’t complain of too much pain, although it was difficult getting her to go to bed tonight, I think she has realized that she gets away with more because she is recovering

NIGHT 5:
It was much better than the last and probably our best so far, while it took C a long time to fall asleep she only woke up twice in the night with very little complaints

DAY 6:
Today C has been much more like her old self, wanting to play a lot and we even took a trip to the store, she requested pancakes for dinner, and was able to eat bologna and cheese for lunch, let’s hope she keeps improving 🙂

NIGHT 6:
C was having a lot of ear pain tonight, the doctor warned us this could happen, but that it wasn’t an ear infection.  She ended up using an ice pack and taking the Tylenol with Codeine and was still up multiple times, I feel so sorry for her.

DAY 7:
Today was a pretty good day considering I thought we would be battling ear pain, C only had to have Motrin once before bed time and that was around noon.  She ate 2 big bowls of Macaroni and Cheese, and she was playing pretty good.

Over all week one wasn’t as bad as I expected it to be, although I did feel a lot like the mother of an infant again.

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C’s Tonsillectomy and Adenoidectomy surgery part 2

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You can see part 1 here

When they wheeled her out for surgery I thought I was going to be super upset and end up crying, but the fact that C was all silly before going in really helped.  I felt a lot better. My niece came with me and since we hadn’t eaten all day we took this opportunity to go get some breakfast at the cafeteria.  The doctor said that we had about 45 minutes to an hour.  Once we were done eating I stopped by the gift shop to get her a balloon, flowers and stuffed animal, and ended up picking Theodore from Chipmunks, and didn’t get the flowers because the clerk was taking forever and I was so scared I would miss the doctor.

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I did well throughout the wait until about 11:05 when the doctor still hadn’t came in to talk to us, and it was well over the hour time limit.  I must admit I started panicking a little and I was worried about C, especially since I do not handle waking up in recovery well, and I wasn’t sure how she would handle it.

At 11:09 the doctor walked in to see us, which meant I only had to go crazy for 5 minutes.  He said her surgery went well, no complications and they were getting ready to bring her into recovery.  He gave me a list of instructions and said they would come in and get me when they brought her back to ambulatory.

It felt like forever from the time the doctor came to talk to us and the nurse came in to tell us she was headed to the room.  I did a lot of pacing, and worrying, and overall just really wanted to see my baby.

It was about 12:15 when they finally came in to get us and were moving C back.  We got to the room first and when they wheeled her in she looked so fragile
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She was sleeping but opened her eyes long enough to open her mouth and show me they were gone, and then went right back to sleep.

We knew before hand we would have to spend about 4 hours there before she would be sent home, so I tried to do some reading, but I was absolutely exhausted

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Over all she did great, she was able to take a few drinks, had half a popsicle and a couple bites of ice cream. There were no complications and no bleeding and she slept a lot through the stay.  She did complain some of her stomach hurting but said she didn’t feel sick.  At around 4:10 she started to complain of a sore throat and they decided to give her fentanyl in her IV before sending her home, since I still had to get home and have my dad go get her prescriptions.  That also made her loopy she sat right up, grabbed the rest of her blue popsicle ate the whole thing and put the stick right up in the nurses face and said “Look a Stiiiiiiiiiiiiiick” About 20 minutes later they removed her Iv and she was able to get dressed back into her PJ’s.

At 5pm we were discharged, I went and wheeled the car around and my niece and the nurse brought her down in a wheel chair
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We made it about 5 minutes in the car before she said she felt sick and threw up everywhere, then immediately went to sleep, it scared the crap out of me and I had to have my niece check to make sure she was still breathing, thank goodness she was!

We made it home and she went right back to bed, and that started the road to recovery!

 

C’s tonsillectomy and adenoidectomy surgery part 1

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So as most of you know C had surgery on July 3rd.  It was the first time either of my babies have had surgery and while it was what they would call a simple surgery to remove her tonsils and adenoids, I was still pretty freaked out.  I think the worst part for me before the surgery was I knew it had been my decision(along with her doctors) to have the surgery done, and I am very afraid that nothing will change after the surgery and I will have put her through it for nothing.  Overall my desire to help my child won, and I decided to go ahead with the surgery.

We had to be at the hospital at 6:30am which meant we had to leave our house at 5:45am.  I should have slept more, I wish I had slept more, but nerves kept me awake well into the morning hours. My alarm went off at 5:10am and I wanted nothing more than to hit the snooze button  and forget the whole plan. Of course I couldn’t do that so out of bed I rolled. I made sure she had everything she wanted to bring with her, number 1 on her list was her scentsy piggy, that is her favorite friend.  C stayed in her pajama’s because she didn’t want to get dressed, and really who cares, she would shortly be changing into a gown.

C was pretty nervous about the surgery and the fact that she has seen me come home in immense pain after a couple of my surgeries did not help.  I tried to explain as best I could that it would not be as bad for her as those surgeries had been for me, since it is less invasive, but I also didn’t want to make it seem like she wouldn’t be in any pain.  It was a tough line to walk but I told her that she would have some pain for a few days, that her throat would be sore and she may have a little bit of ear pain, but that the doctors would give her medicine to help her feel better.  She was very concerned with where I would be while she was having surgery and if she would be asleep.  I covered all of that for her and I think her nerves calmed down.

We arrived at the hospital at 6:25am and got her settled in a room to wait.  Because the lab had forgotten one of the blood tests they were suppose to get, they had to redraw her blood at the hospital.  We were there about 15 minutes before they came in to do this, and she was not a happy camper when she found out.  He was great with her up until the point he missed her vein and kept trying to find it, which was breaking my heart because she was screaming.  Eventually he pulled the needle out and had to switch arms, this did not go over well with the munchkin, we basically had to hold her down.  He hit on the first try in that arm and when it was over she said “Oh that one didn’t hurt”

The nurses were absolutely amazing with her, she ended up laughing a lot and bringing home a ton of stickers and a coloring book.  They even came in and gave piggy her own hospital bracelet

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The rest of the time was a lot of talking to nurses.  About 5 minutes before being taken to the holding room they came in to give her the Versa(used to calm her down so she wouldn’t be upset when she had to leave me and so she wouldn’t remember right before surgery and associate it with something bad) which they said would make her loopy, Oh boy I wasn’t counting on how loopy it made her, her pupils were so dilated that you could barely see the color in her eyes, she was giggly and wobbly and then started playing peek a boo
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The good news is she definitely wasn’t upset.

At 9:50am I gave her one last kiss and hug and they brought her into the operating room

The sickness never ends

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I have talked a lot about C being sick and if you stick with me long enough you will see it yourself.  C is sick more than almost any child I know, and she always has been.  She got Croup at 6 months and RSV at 7 months and was hospitalized
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After the bout of RSV she got Bronchiolitis, she was put on a nebulizer with albuterol and budesonide, this was the start of many years of illness.  She continued to get Bronchiolitis within weeks of getting better from the last bout, to total 14 times in all, and bringing her to 17 months old.  She was in and out of the doctors so often that many times I thought it would be easier to just live there.  The doctors and nurses at both her pediatricians and the children’s hospital new us by name. It scared the crap out of me if I am going to be honest.  I was convinced something horrible was wrong with her, I would lie awake at night wondering what that something could be and when we would find out.  When she was 12 months old she had her routine blood work done, a few days later I was driving down the road when my cell phone rang and I answered (It was still legal in TX then) The nurse told me that something was wrong with her blood work and I almost wrecked my car, I was sobbing,  I guess the nurse wasn’t expecting that because she quickly told me that it was just her iron levels…note to the nurses out there, please start with that bit of information, because any paranoid parent(aren’t we all paranoid?) will tell you that low iron is not what runs through our minds when you say something is wrong.  Oh and I am not downplaying low iron but let’s be honest it is a pretty good alternative to all of the things that ran through my mind in that 60 seconds.  That just made me more paranoid to be honest, I would question her doctors repeatedly, I begged for tests and they would always tell me she was too young for allergies, that they did not feel it was anything life threatening, or a disease.  When she was 18 months old we moved home to NY for 9 months while my husband went to Iraq.  Strangely she didn’t get sick at all in those 9 months, and I started feeling much better, thinking maybe that we were out of the woods, and she wouldn’t be sick like she was before. That 9 months was a teaser, it allowed me to see what life would be like if she wasn’t sick so often, and I loved it. It was wonderful to see my baby thriving and not be attached to a breathing mask.  We were back in Texas for only 2 months before it started again.  She got bronchitis and all I could think was oh no not again, I was right to feel that way, because it has been never ending since.  She has been sick on average 14 times a year.  Most of the illnesses have to do with bronchitis, strep, tonsillitis, random very high fevers(103 and higher) and sinus infections although she occasionally gets stomach bugs and for a few month stretch we went through a phase of her throwing up every night from 10pm-3am, she would be perfectly healthy throughout the day, would have no fever, no cough, no headache, no tummy ache, no nothing except the 5 hours of vomiting.  We kept food logs, ran tests on her stools, and urine, had x-rays done, and they never found out what was wrong.    For awhile I thought she was just allergic to El paso Texas, but that was proven incorrect when we moved home to NY for this deployment, the illnesses did not stop, in fact they may have gotten more frequent.  6 months ago the doctors here diagnosed her with mild asthma and allergies, but never tested her to find out what exactly it is she is allergic to, despite my pleads.  They did finally agree to send me to an Ear nose and throat specialist who decided the best route was to remove her tonsils(surgery is scheduled for July 3), and he agreed that she should have a full work up to find out if she has an immune deficiency, but her pediatrician thinks it is best to wait until after the surgery to do those things. I disagree especially since we will be moving most likely in August and I will have to start the explanations and pleading all over again with a new doctor, because they never listen to the records, speaking of I have yet to find out the point of records other than for shots, since doctors make you go through everything all over again no matter what the records say.  I am writing this now because we are right around the corner from blood work, pre-op, vacation and surgery and she is again sick.  She has swollen tonsils, a fever of 101.7, a sore throat, cough and headache, they are treating her for strep even though the quick test came back negative, and I am pretty nervous her surgery will have to be rescheduled.  I feel helpless, like there is nothing I can do for my little girl.  She is so strong but has gotten to the point where she just looks at me crawls up in my lap and tells me how much she hates being sick “even though hate is a bad word, I really hate being sick mama, I don’t want to be sick anymore” What do you say to that and what do you do?